Baby Joel, prenatally diagnosed with anencephaly, held by his father (2015).

Online Workshops

Supporting Parents in the Preparation of a Birth Plan  

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Guidance for First Responders: Encouraging Parents to Carry to Term 

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BNA Peer Ministry Training Program 

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2018 Be Not Afraid Parent Survey Results

Parents served were sent an online survey that allowed them to respond to nine statements and provide a written free response regarding the BNA support they received carrying to term following a prenatal diagnosis. 100% agreed they would encourage other parents experiencing a prenatal diagnosis to carry to term and 100% would refer parents to BNA. Additional results follow...

 

97% agreed that the BNA support they received was important to their personal well-being in the experience of carrying to term.  (No one disagreed with this statement.)

BNA gave me so much guidance and support as I didn't know anyone who had received a prenatal diagnosis like we had.

The support we received was game-changing.  I can't imagine having gone through this without BNA.

Such amazing support and information to help me parent my little guy the best I could while he was here with me.

It made a tremendous difference being able to talk with someone 1) who had also experienced a similar experience and 2) who wasn't involved in my life otherwise.

The support we received from BNA was invaluable. Their support and resources were instrumental in getting the best care for our baby that we could.

 

100% agreed that BNA responded to their questions and concerns in a timely manner.

They answered so many questions for me, oftentimes even before I had thought of them.

Even at odd hours, always there to help.

 

97% agreed that the BNA peers and volunteers were sensitive to their needs and knowledgeable.  (No one disagreed with this statement.)

Absolutely!  They were so kind, encouraging, and knew so much of what we were facing.

Especially helpful to have a guide whose son had the same diagnosis.

They provided such wonderful care and resources for us and our son. Their love for us and our son was shown throughout our pregnancy and the months that followed.


95% agreed that BNA provided support not otherwise available to them. (No one disagreed with this statement.)

Yes, we had a lot of caring friends and family but none of them really understood what were going through.  I don't know what we would have done without BNA.

No one else really knew what I was going through and not everyone understood or was willing to help.  BNA was there for me every step of the way.

I was grateful for the support I received.  It was invaluable!

Although we had great family and community support, BNA helped us with things family and friends would not know how to help with--practical things like writing a birth plan, arranging a priest for a hospital baptism, connecting us with peers, etc.

 

90% agreed that BNA had a positive impact on their communications and relationships with their medical providers. (No one disagreed with this statement.)

Yes, they helped prepare us for speaking with our providers.  We were told repeatedly by our doctors and nurses that we had such a good grasp of our situation and were so well prepared.  I know this is because of BNA.

They helped me figure out what I wanted and didn't want, how to talk to my doctors and share our wishes.  They told me it was OK to ask for things that I didn't even know were possible.

I knew what my options were before speaking with my doctors so I felt more able to stand my ground on the choices I made.

BNA helped us mentally prepare with questions we should ask and encouraged us to speak up exactly for what we wanted.

BNA absolutely had a positive impact.  They successfully guided us through a panel meeting with the doctors who would be delivering our son and helped me create a birth plan to present to the doctors to insure he would be given an equal chance at life.


Thank you to every BNA parent who took the time to complete this survey.