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		BeNotAfraid Community Support for Specific Diagnoses hydrops AND hygroma		Jessie, rosiesmom, tmas		Last Activity 2010-07-01 9:27 AM 7 replies, 1233 viewings

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Subject : hydrops AND hygroma
Posted : 2008-06-06 8:52 PM
Post #4552

Okay moms (and dads) - can we have a roll call of those who had/have a baby with both cystic hygroma and fetal hydrops. I know there is someone out there who could really benefit from seeing how many of you have dealt with this.

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jayden1208

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Subject : RE: hydrops AND hygroma
Posted : 2008-06-07 1:26 AM
Post #4556 - In reply to #4552

I am one of those blessed mothers.

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rosiesmom

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Subject : RE: hydrops AND hygroma
Posted : 2008-06-07 3:51 AM
Post #4558 - In reply to #4552

me! Suppose we should also post the outcome even though it may be hard for those who have lost, it may also give hope to others.

So Rose had both,given 5% chance of survival - now a glorious 18 month old with very very mild Turners Syndrome

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rosiesmom

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Subject : RE: hydrops AND hygroma
Posted : 2008-06-07 3:52 AM
Post #4559 - In reply to #4552

Lena is another, not sure she posts checks here regularly, tho I'm in touch via email. Maybe link in her story Monica?

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rosiesmom

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Subject : RE: hydrops AND hygroma
Posted : 2008-06-07 3:53 AM
Post #4560 - In reply to #4552

And here's another - from my website!

http://rosiefoster.org/Hope.aspx

[Edited by rosiesmom on 2008-06-07 3:54 AM]

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Subject : RE: hydrops AND hygroma
Posted : 2008-06-09 12:23 AM
Post #4566 - In reply to #4552

Read ALL through Rosie's site -- every story! And I recommend printing out some of the stories for any overly-cynical MD's.

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Amanda & Jason

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Subject : RE: hydrops AND hygroma
Posted : 2010-07-01 4:24 AM
Post #6624 - In reply to #4552

We are pregnant parents (17 wks. now) of a baby w/ a cystic hygroma. We have created a FaceBook page to collect and share resources:

http://www.facebook.com/pages/Cystic-Hygroma/119196188124310?v=photos&ref=share#!/pages/Cystic-Hygroma/119196188124310

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Subject : RE: hydrops AND hygroma
Posted : 2010-07-01 9:27 AM
Post #6629 - In reply to #4552

Wonderful, thank you for sharing that! Let us know when your next dr appointment is and how things are looking, okay?

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