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 BeNotAfraid Community
 
Introduce Yourself 
My intro
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Jessie, rosiesmom, tmas |
Last Activity 2010-09-07 4:11 PM 11 replies, 302 viewings |
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| AmyBeth Posts: 10 (70.144.163.134) Joined: 2010-05-19 Location: Cary, NC  User Profile |
I'm a mom of many (see my siggy if I did it right) 6 biological kids and 3 adopted. I'm 27 weeks pregnant with Andrew Benedict. The doctors have not been able to make an official diagnosis for Andrew. All of the genetic testing came back normal. He has severe hydrocephaly...at yesterday's ultrasound his head measured the size of an average 31 week baby. His chest cavity is also very small. His lungs are terriblly underdeveloped as his heart is taking up 75% of his small chest. Yesterday was the first time the ultrasound detected a thickening of the heart walls and fluid around his heart, indicating heart failure has begun. Seven weeks ago we had hope that he would be born alive and that we would get a few hours with him. Yesterday we were told there is now a high probability of a stillbirth. We have recently moved to NC from Indianapolis (3 weeks ago, actually) so we are now also trying to navigate a new town, parish, doctor and hospital, and the fact that we have virtually no local support as our families and friends are all in the midwest. Life is challenging to say the least. I'm so grateful to have found this group. Amy | ||
| Administrator Posts: 3068 (67.167.94.88) Joined: 2002-08-23 Location: Chicago, IL User Profile |
Amy - I'm direct messaging you in just a second - hang on. | ||
| Administrator Posts: 3068 (67.167.94.88) Joined: 2002-08-23 Location: Chicago, IL User Profile |
Amy, there is a neonatologist I feel comfortable referring people to at UNC. If you think there is enough disparity in the accounts you were given about baby Andrew Benedict, and want to talk to him about what they are saying, he says he would be happy to talk with you. I'll get you his email/phone if interested. It would have to be like an "informal" discussion . . . Prayers and hugs! | ||
| Heartsong Posts: 159 (98.239.1.129) Joined: 2010-03-14 Location: Meridian, MS User Profile |
I woke up in the night and decided to check on Laura. I am not sure if you got my PM. I am praying for you and wanted to be sure you knew. Thank you for your link the other day to the blog. Love, Cheryl | ||
| AmyBeth Posts: 10 (70.144.163.134) Joined: 2010-05-19 Location: Cary, NC User Profile |
Amy | ||
| Administrator Posts: 3068 (67.167.94.88) Joined: 2002-08-23 Location: Chicago, IL User Profile |
Ahh, Amy I am looking forward to that story! How often are you going to Duke now?
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| AmyBeth Posts: 10 (70.144.163.134) Joined: 2010-05-19 Location: Cary, NC User Profile |
Amy | ||
| Administrator Posts: 3068 (67.167.94.88) Joined: 2002-08-23 Location: Chicago, IL User Profile |
Bumpity-bumping back up so the moms can keep you in their minds and on their hearts. | ||
| Administrator Posts: 3068 (67.167.94.88) Joined: 2002-08-23 Location: Chicago, IL User Profile |
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| Heartsong Posts: 159 (98.239.1.129) Joined: 2010-03-14 Location: Meridian, MS User Profile |
Thinking of you today. Praying for you. Love, Cheryl | ||
| Heartsong Posts: 159 (98.239.1.129) Joined: 2010-03-14 Location: Meridian, MS User Profile |
Love, Cheryl | ||
| Administrator Posts: 3068 (67.167.94.88) Joined: 2002-08-23 Location: Chicago, IL User Profile |
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