BNA offers a free on-line training for PRCs regarding the care of parents experiencing a prenatal diagnosis and carrying to term.  Topics covered include understanding this new kind of "crisis pregnancy," statistics regarding abortion following prenatal diagnosis, how abortion becomes a treatment option and part of routine obstetric care to include a discussion of disability bias, and the specific challenges for PRCs when considering how to support parents experiencing a prenatal diagnosis.

For information regarding how to access this training, please contact us.

"Newborn Care and 'Lethal' Prenatal Diagnosis"

 

 

 

Parental hopes, interventions, and survival of neonates with trisomy 13 and trisomy 18 (Janvier, Farlow) - longer survival if no prenatal dx:  

 

 

What If the Prenatal Diagnosis of a Lethal Anomaly Turns Out to Be Wrong? (OI study):

 

 

Lethal Language, Lethal Decisions (behind paywall):

 

 

Fatally flawed? A review and ethical analysis of lethal congenital malformations "The designation ‘lethal’ overlaps with the concept of ‘medical futility’. The term is used for a heterogenous group of conditions, and hinders clear communication and counselling."

  

 

Survival of Children with Trisomy 13 and Trisomy 18: A Multi-State Population-Based Study:

 

 

Long-Term Outcomes of Children With Trisomy 13 and 18 After Congenital Heart Disease Interventions:

 

 

Heart surgeries benefit babies T13 and T18:

 

 

Better Prognosis in Newborns with Trisomy 13 Who Received Intensive Treatments: A Retrospective Study of 16 Patients:

 

 

Prolonged unassisted survival in an infant with anencephaly:

 

 

Should newborns with T18 be considered as candidates for heart surgery or is T18 uniformly fatal?